My Wonderful ER Visit

Every V-Day I am always deathly sick, I either get sick the day before, after, or on V-Day. I usually get the flu, but this V-Day takes the cake! The night before my Dad had given Mom and I's V-Day gifts, because Dad wouldn't be able to see our faces when we got them if we got them on V-Day, because Dad would be at work, and he really wanted to see our faces. So we got our gifts. I got a chocolate cow! I love cows! Anyways, Mom and I stayed up all night with me hurting. I couldn't go to sleep, because I have a hard time getting myself to sleep when I'm hurting. So we stayed up all night. Then when I finally did get to sleep I woke up around 6am and got Dad up for work, because he was sleeping through his alarm. I hadn't told Mom that I was hurting in my back and my stomach. I never hurt in my stomach like I do in my back. Instead of telling her, because I thought it would go away, I put my warm pack on my stomach instead of my still hurting back. I fell back asleep and when I woke up again I felt like I was going to throw up, so Mom gave me some finergrin hoping I could keep it down. I spent I think about 3 hours in the bathroom sleeping and hugging the toilet. I only drooled in the toilet.(I drooled because, before you throw up you drool) So thinking that it was a bit safe I crawled back to the couch and Mom gave me a zip-lock bag to throw up in just in case. Not long after I threw up. I couldn't take any pain meds or any of my other meds because I couldn't keep them down, so whats the point? The pain got worse and I was asking Mom to go to the hospital. Mom can't drive because she has MS, so Mom had to call Dad and he got off work and came to take me to the doctors office in GI. I threw up before we left and Mom packed some clothes just in case we had to go to the hospital. We got to the doctors office and I threw up in the parking lot. By that time the pain was getting much worse and I started to scream and squeeze things hoping the pain would subside. I had to be put in a wheelchair and taken up to the doctors office. I got in there and they set me on the little bed/table thingy. I laid down and I was pounding my fist into the table. I begged the doctor to send me to the hospital. Mom was thinking it was some stomach bug and I told her she was wrong. My parents were saying "Yeah, you just want to go to the hospital" Uh, DUH! I needed to the doctor said to them the same thing I did. He said that I needed to be sent to the ER right then and there. I needed fluids going through me and IV pain medication, because I can't hold anything down. The pain was just gonna get worse and make everything else worse. So, by the time I got in the ER lobby I was screaming and the people at the front desk acted like I was just fine and dandy! The reason we were in the ER was because, if I was directly admitted I would be sent home and we would have to wait for a bed, at least when I'm in the ER I'm in a room and they can start and IV and get pain meds in me. So I got into the ER room and thew up again. All I wanted was the IV so I was screaming bloody murder, because it hurt so bad. 30 mins later I finally get an IV. Then we had problems with the pain meds, they came back with 1mg of it I was supposed to have 2mg of it. They said that, that would have to do for the moment because it would take a long time before they got a hold of my care taker. They gave it to me and I knew it wouldn't do anything because I have been taking this med for 6 months. So, I was in so much pain that I finally just knocked myself out. I would wake up every few and start screaming again, but then I would knock myself out again. I can only have my pain meds every 4 hours so yeah I had no choice but to knock myself out. I woke up and Mom was so pissed at me. She was pissed because the doctor came in and didn't really think anything was wrong with me. But my blood work never lies. I was being admitted because of my pancreas. It was messing up again. I fell back asleep again and when I woke up I was screaming bloody murder once more. It was time for my pain meds so I told the doctor and a nurse and 35 mins later still no pain meds! Mom was crying she was so pissed at the world, she chewed every ones butt who walked in the door. I pressed the nurses button 5 times within the time length of 45 mins and no one came. Mom even opened the door so they could hear me screaming. There were 2 nurses at the nurses station and we were right next to it. I know that they heard me and they were just laughing and having a good ol time. Mom finally had enough and got in her wheelchair and grabbed the male nurse that I had and went at it with him. He said that he had 4 other children, he had one that is a diabetic and two with fevers. Um, hello! What about the one that sounds like their arm is being cut off!?! So mom wheeled herself back into the room and slammed the door behind her. A few mins later he came in there and he saw Mom crying and he was like "We are going to take good care of her blah blah blah" I don't call that taking good care of me! Anyways, he went back out and came back in with 2mg of pain meds. That helped a lot, but still not enough. An hour later they finally had a room for me in the hospital. We had spent probably a total of 8 hours in the ER waiting for a room to be available. They took the bed that I was laying in and wheeled me up to my room on the first floor. When I got in the room I threw up once more. The nurse had read the chart wrong and gave me my pain meds 2 hours early. I needed that, I think that's what really helped me through the pain that well I guess you could say morning since it was 1am. I threw up once more when she tried to get liquid medication and one pill down me and when I threw up that time, it was a lot different than the last few times. The last few times I threw up food, this time it had a diff smell and it was nasty brown liquid! Turns out I was hurting so bad and I had nothing else to throw up, I threw up crap! That is gross! Turns out I have a fatty liver and my pancreas was a lil elevated. Also I was so full of crap that I was backed up and it was going up my stomach, that's the main reason why I threw up crap. They took care of the whole being backed up thing, trust me. It wasn't fun...I'm home now and still hurting. I have to be on a strict diet again! I hate my life! Oh, and I am a lost cause at Scottish Rite, they have done everything they can, so when I go for surgery on the 12th of March in Alabama, they are going to see if they can't find out whats wrong with me.

Sitting At Home

Well, I am sitting at home now. I don't know if I wrote in here if I went back to the hospital again, but I did. While I was there the ALPS test came back, and guess what? I GOT MY DOLLAR! Yeah, that's right, it came back negative. Just like everything else...Also while I was there I gained A LOT of weight. I came in there weighing 108 pounds and came out weighing 114 pounds! All of it went to my stomach and my cheeks! I look like a pregnant chip monk! I actually had three people ask me when I was due in the hospital break room! I about killed them! Oh, but the up side is, is that I now have a butt and some boobs! Mom says when I start loosing weight that's the first place I will lose it. I can't even fit in my underwear(TMI I know) or my pants anymore! I have to wear sweat pants and a sweat shirt all the time. It actually works, it covers up my baby belly. I think I will name him Tater XD. This sucks! I am actually hurting worse than when I was in the hospital, and the pain team is refusing to give me my pain meds through IV, because they are afraid of my heart stopping or me getting addicted to it. I know they think that I am addicted to it. How dare they think that! That is probably the only reason they won't give it to me. I am hurting so bad that I can't even walk up the stairs to my bedroom, my Dad has to carry me up. I can make my way back down, but not up. So I bring everything I need downstairs for the day, because I can't get back up the stairs, because Dad is gone for work. I am home schooled at the moment, because of the pain and I'm on narcotics so I'm not allowed at school. I take an Epsom salt bath almost everyday, because the salt helps with the pain. Me and my Mom are getting along better, but every now and then we tear each others heads off like we used to. I think some of the pain has to deal with stress, but my Grandma, Dad, and Mom is in denial. So my Mom and I are up each others butts 24/7. Oh, and I get to look forward to more pain, because I opened up my big mouth and suggested that they take me off some of my meds and see what happens, because the medicine is masking what is going on. So they are taking me off my prednisone slowly, to see what happens. The last time I was off of my prednisone I threw up in the truck, because the pain was so bad. They put me back on prednisone and I was fine, but now as you can see, is not the case. Oh, I got to see my brother for the second time in my life last night. He works 15 hours a day so you can't blame him for not coming around so much. We told him that if he needed a place to stay, he can stay here, anytime. He is off Monday, Tuesday, and Wednesday, so he might come and visit since Mom and I are always home lol. My mom has MS, so she can't drive or go up stairs or anything like that, because her whole right leg is paralyzed. So we can't exactly go anywhere anytime when we want...Well, I need to lay down I am starting to hurt worse. So Byez!

Back In

Well, I am back in the hospital again...The pain got so bad that my grandmothers finally called. The ALPS test still hasn't returned...sadly. The pain started two days after I got out. The pain started in my ankles, knees, and wrists. That pain started before went into the hospital a couple weeks ago. They kept freezing up and hurting me to the point were I would yelp, and I don't normally make noise when I hurt. Then day by day it got worse, and started to spread. Now it is all through my legs even in my toes! It is spreading in my back, and now my other side of my ribs hurt as well. Plus its now in my fingers and is now spreading in my arms...I can feel it...Every time I go to bed, and wake up it feels like a huge BRONCO ran over me, and I can't even move. All I do is scream...or rather yelp.I don't even have to move and it hurts! The only thing they can do for me right now though is give me IV pain meds...

Home At Last

I am finally home!! I came home in the snow lol. It was so cool!! The best part...I finally met my Brother...I have never seen him in my life till now. He came in and I didn't know who he was. For the first time in my life I was speechless! I started to cry lol. This Dads first time seeing him too. Daniel has been searching for Dad for two years now. This meeting was planned for six months! Dad and I had no clue about it lol. My Aunt found him on the Internet and gave my Grandmother his number. Now he is here lol. They are planning to get tattoos together real soon. He is so much like me in so many ways. I still have to get used to Daniel calling my Daddy, Dad and my Mom, Mom. For so, so many years I have waited for this day to come. That is all i ever wanted ever since my Dad told me about him. He looks so much like my Dad...but...now I'm not the only child anymore. I guess I have to get used to that as well. I'm just glad that I have finally met him...

No News/Home

Well they looked and they said that I don't have Hyper IGG4 So I guess that is good. Now all we are doing is waiting for the ALPS test to come back. I made a bet with one of the doctors, that it was going to come back negative and he said it would come back positive. He bet a dollar...cheep skate...Oh well, his loss...There is not much to say but that I am going home tomorrow morning...I feel like I am being tossed to the side, but no one cares what I feel...I do want to be home, but part of me doesn't want to leave this hospital till I know what is wrong. I am in pain, but now I am on OP pain meds...It starts working in an hour. Thats why I like IV pain meds, but I can't go home if I get IV...I don't know what to do anymore...

Pet Scan

Well, I went and got my pet scan done today. It was horrid...I had to drink some really nasty stuff called barium. I still smell it and I never want to smell or taste anything like it ever, ever again! It made me want to throw up and that is supposed to be the better tasting contrast. The scan itself wasn't so bad. At least they didn't have to sedate me like they had to for the MRI. I was asleep for the most part anyways. Well now I have to work on getting myself off the IV pain meds then they will put me on pill form. One of the doctors here is trying to send me home, and my grandma said "So you are just gonna let this stuff eat up her kidneys?" He was like "Ummm you will have to talk to Dr. Louis about that." lol So he knows when to back off. I really want to find out what is wrong with me. So far they have found no signs of Lymphoma. So, yay no Lymphoma^^ I guess I can cross that off my list...I thought that if it wasn't Lymphoma that I would have to go to Ohio...Well I will talk to Dr. Morris about that when he returns. Dr. Morris is resting at home because he was in the hospital over the weekend. He is a very sweet man and he is single if anyone is interested in him. He is looking for someone that will care for him and that will love him no matter what. You would be one lucky woman if you had a man like him. I just hope he gets better soon...

Surgery

Sorry I didn't get to write anything yesterday, my Grandmother was on the computer all day and all night working. I finally just gave up and went to bed. Well, the surgery hurt really bad. I still can't even bend down to save my life. They punctured my kidney four times and got bone marrow out of both sides of my hips. My back is so swollen from that stupid surgery. Good thing they are upping my pain medication for I guess just for today. I got to see my Mom and my Dad yesterday. Dad could only stay for a few minutes, but then he had to leave for work. It upset me that my Dad couldn't be there for my surgery. This was the first surgery that I have ever flipped out about. For some reason I was scared...Everything turned out ok though. Oh, I didn't get a picc line put in, but they are going to try again soon so yeah. Well tomorrow I have to go for a pet scan. This should be fun...I am claustrophobic so um yeah. They had to sedate me for an MRI the last time I had one. I was in that stupid tube for like two hours and I was only supposed to be in there for 40 minutes. I had a panic attack so they sedated me. Oh my Nanny just called me and I haven't talked to her in like 9 years! She doesn't sound like I remember...Well until tomorrow...